Publications Library

Potter, S. et al. (2024) Protocol for the development of a core outcome set and reporting guidelines for locoregional treatment in neoadjuvant systemic breast cancer treatment trials: the PRECEDENT project, BMJ.

Rowbotham, N. et al. (2023) A refresh of the top 10 research priorities in cystic fibrosis, Thorax

Osmond, M. et al. (2023) Partnering With Patients, Caregivers, and Clinicians to Determine Research Priorities for Concussion, JAMA Network Open.

Reeve, E. et al. (2022) Consumer and Healthcare Professional Led Priority Setting for Quality Use of Medicines in People with Dementia: Gathering Unanswered Research Questions, Journal of Alzheimer's Disease.

Drury, N. et al. (2022) Research priorities in children and adults with congenital heart disease: a James Lind Alliance Priority Setting Partnership, Open Heart.

Potter, S. et al. (2022) Identifying research priorities in breast cancer surgery: a UK priority setting partnership with the James Lind Alliance, Breast Cancer Research and Treatment.

Staley, K. et al. (2022) Research priorities in pernicious anaemia: James Lind Alliance Priority Setting Partnership, BMJ Open.

Gill, P. et al. (2022) Patient, Caregiver, and Clinician Participation in Prioritization of Research Questions in Pediatric Hospital Medicine, JAMA Network Open.

Watson, J. et al. (2022) The opportunities and challenges of implementing our research priorities, British Journal of Occupational Therapy.

Singh, A. et al. (2022) Canadian epilepsy priority-setting partnership: Toward a new national research agenda, Epilepsy & Behavior.

Goodridge, D. et al. (2022) Top 10 research priorities for people with obstructive sleep apnoea, families and clinicians: James Lind Alliance Priority Setting Partnership, Thorax.

Hartigan, I. et al. (2022) Caring During COVID-19: Identifying Research Priorities for Family Carers. Family Carers Ireland.

Turner, P. et al. (2021) Identifying key priorities for research to protect the consumer with food hypersensitivity: A UK Food Standards Agency Priority Setting Exercise, Clinical & Experimental Allergy.

Zhong, T. et al. (2021) Identifying the top research priorities in postmastectomy breast cancer reconstruction: a James Lind Alliance priority setting partnership, BMJ Open.

Aussems, K. et al. (2021) Research agenda setting with children with juvenile idiopathic arthritis: Lessons learned, Child: Care, Health and Development.

Dainty, K. et al. (2021) Partnering with survivors & families to determine research priorities for adult out-of-hospital cardiac arrest: A James Lind Alliance Priority Setting Partnership, Resuscitation Plus.

Watson J. et al. (2021) Identifying research priorities for occupational therapy in the UK: A James Lind Alliance Priority Setting Partnership, British Journal of Occupational Therapy.

Hanson, H. et al. (2021) Identifying what matters most for the health of older adults in Alberta: results from a James Lind Alliance Research Priority Setting Partnership, CMAJ Open.

Ayman, G. et al. (2021) ‘The top 10 research priorities in diabetes and pregnancy according to women, support networks and healthcare professionals’, Diabetic Medicine

Verwoerd, A. et al. (2021) ‘Dutch patients, caregivers and healthcare professionals generate first nationwide research agenda for juvenile idiopathic arthritis’, Pediatric Rheumatology.

Cowan, K. et al. (2021) ‘Rapid prioritisation of topics for rapid evaluation: the case of innovations in adult social care and social work’, Health Research Policy and Systems.

Holmes, EA. et al. (2020) ‘Multidisciplinary research priorities for the COVID-19 pandemic: a call for action for mental health science’, The Lancet.

Cowan, K. (2020) Survey results: Understanding people’s concerns about the mental health impacts of the COVID-19 pandemic, London, MQ Transforming Mental Health and the Academy of Medical Sciences.

Cowan, K. (2020) A Practical Guide to Being Inclusive in Public Involvement in Health Research - lessons from the Reaching Out programme, Southampton, INVOLVE.

McKeen, D. et al. (2020) ‘Top ten priorities for anesthesia and perioperative research: a report from the Canadian Anesthesia Research Priority Setting Partnership, Canadian Journal of Anesthesia.

Tong A. et al. (2019) Reporting guideline for priority setting of health research (REPRISE), BMC Medical Research Methodology.

Lim AK. et al. (2019) ‘Joint production of research priorities to improve the lives of those with childhood onset conditions that impair learning: the James Lind Alliance Priority Setting Partnership for ‘learning difficulties’’, BMJ Open.

Peeks F. et al. (2019) ‘Research priorities for liver glycogen storage disease: an international priority setting partnership with the James Lind Alliance’, Journal of Inherited Metabolic Disease.

Rankin, G. et al. (2019) ‘Identifying Priorities for Physiotherapy Research in the UK: the James Lind Alliance Physiotherapy Priority Setting Partnership’, Physiotherapy.

Parker, SG. et al. (2019) ‘Priorities for research in multiple conditions in later life (multi-morbidity): findings from a James Lind Alliance Priority Setting Partnership’, Age and Ageing, 48, 3: 401–406

Bethell, J. et al.(2018) ‘Patient and Public Involvement in Identifying Dementia Research Priorities’, Journal of the American Geriatrics Society.

Pickett, J. et al. (2018) ‘A roadmap to advance dementia research in prevention, diagnosis, intervention, and care by 2025’, International Journal of Geriatric Psychiatry, 33(3)

Finer, S. et al. (2018) ‘Setting the top 10 research priorities to improve the health of people with Type 2 diabetes: a Diabetes UK–James Lind Alliance Priority Setting Partnership’, Diabetic Medicine

Finer, S. et al. (2017) ‘Top ten research priorities for type 2 diabetes: results from the Diabetes UK–James Lind Alliance Priority Setting Partnership’, The Lancet Diabetes & Endocrinology, Vol.5 No.11.

Boddy, K. et al. (2017) ‘Does funded research reflect the priorities of people living with type 1 diabetes? A secondary analysis of research questions’, BMJ Open, Vol. 7, Issue 9.

Fitzcharles, M. et al. (2017) ‘A paradigm change to inform fibromyalgia research priorities by engaging patients and health care professionals’, Canadian Journal of Pain.

Van Furth, E. et al. (2016) ‘Top 10 research priorities for eating disorders’, Lancet Psychiatry, Vol. 3.

Cowan, K. (2016) Examples of regional networks for public involvement in research. Southampton, INVOLVE.

Cowan, K. (2016) Involving Children and Young People in Research: top tips and key guidance. Southampton: INVOLVE.

Cowan, K. (2015) 'Who decides the priorities for medical research?', Alliance Magazine, June 2015.

Kelly, S. et al. (2015) ‘Dementia priority setting partnership with the James Lind Alliance: using patient and public involvement and the evidence base to inform the research agenda’, Age and Ageing, 44: 985–993

Stephens, R. (2015) ‘Research priorities in mesothelioma: A James Lind Alliance Priority Setting Partnership’, Lung Cancer, Vol. 89, Issue 2, pp. 175–180.

Crowe, S. (2015) ‘Patients’, clinicians’ and the research communities’ priorities for treatment research: there is an important mismatch’, Research Involvement and Engagement, Vol. 1.

Morris, C. et al. (2015) ‘Setting research priorities to improve the health of children and young people with neurodisability’, BMJ Open, 5:e006233.doi:10.1136/bmjopen-2014-006233.

Cowan, K. (2014) Senior Investigators: leaders for patient and public involvement in research. London: NIHR.

Van Middendorp, J. et al. (2014)  ‘Correspondence: Top ten priorities for spinal cord injury’, Lancet Neurology, Vol. 13.

Rowe, F. et al. (2014) 'The Sight Loss and Vision Priority Setting Partnership (SLV-PSP): overview and results of the research prioritisation survey process', Opthalmology Research, Vol.4 Issue 7.

Chalmers, I. et al. (2013) 'Tackling treatment uncertainties together: The evolution of the James Lind Initiative, 2003-2013', Journal of the Royal Society of Medicine, 106(12).

Petit-Zeman, S. et al. (2013) 'Patients/carers and clinicians can set joint priorities for research in cleft lip and palate', International Journal of Pediatric Otorhinolaryngology 77(3).

Cowan, K. (2013) 'What are the experiences of external executive coaches working with coachees' assigned goals?', International Journal of Evidence Based Coaching and Mentoring, Special Issue 7.

Cowan, K. (2010) 'The James Lind Alliance Tackling Treatment Uncertainties Together', Journal of Ambulatory Care Management 33(3).


Academic papers listed on ResearchGate here.